Today I had the appointment to get my visual field test done for my Epilepsy surgery. That appointment lasted for over two hours and I was getting kind of restless. The visual field test was very easy to me but the only thing was, my eyes were starting to tear up because of the long time that I was looking at the lights from the machine. It was frustrating. I had never been through this type of test before. It was well worth my time if it was necessary for me to have it done for Epilepsy surgery. This test took maybe around twenty to twenty five minutes to complete. The technician had to cover each one of my eyes, one at a time and had me look at this light. She asked me to press the button each time I saw a flashing light. After the test ended, I met with the neuro- ophthalmologist and he told me that the test discovered that I had thin damaged pieces of my brain that was causing me to be blind in the right peripheral vision in each one my eyes. So I cannot see out of the right side of both of my eyes. I was so shocked. I let my doctor know that my neurologist in Chicago told me about the encephalomalacia which is the thin pieces of my brain when I was 17 years old. I definitely did have problems seeing out the right side of each one of my eyes but it is still a big WHOA to me. It is nothing new to me. It is all due to the stroke that I had before I was born but I’m a strong person and I can take this type of information. I’m not going to let it hold me back. It’s going to make me stronger. Right now, I have to wait for my neurosurgeon to review this test and hopefully I can schedule the surgery date soon.
I always say, “Cerebral Palsy and Epilepsy doesn’t slow me down. They build me up!” I stay true to that motto.
ELIAES (Express, Love, Include, Advocate, Educate, and Support)